The study explores diagnostic and treatment pathways for Hidradenitis Suppurativa (HS) by analyzing social media posts, dermatologist and patient surveys, and health insurance claims in Germany. It reveals significant diagnostic delays and frequent misdiagnoses, often taking years for patients to receive accurate diagnoses. These findings highlight the need for broader medical awareness and interdisciplinary strategies to improve HS management.
Kirschner, Kahn, Papukchieva, Stosio, Keis, Biermann, Häusser-Fruh, Sturm, Eberl, Friedrich, Kurzen; Diagnostic delay in Hidradenitis suppurativa investigated using data from social media and from statutory health insurances
JDDG: Journal der Deutschen Dermatologischen Gesellschaft 158(114129), 15411
